Like a lot of Fibromyalgia, Myalgic Encephalomyelitis and multi-chemical sensitivity patients, I hate talking about it. I don't want people to think I'm just a complainer, a 'Debbie Downer ' like that SNL character.
Instead I'm surfing the net or watching Netflix, doing things to distract myself while I'm in pain/and or are tired, and or breathed-in/ ate / or were exposed to something that made me feel sick. Or all three? The days I do complain are usually my worst days when I feel I want to scream at the top of my lungs make this pain stop. The word I hate most is CANT. I don't know about others but I like to get things done. It's been hard to realize I have to tell myself you can't do this today; but it's worse telling others that I'm sorry you can't do what they think you should be able to do. Simple trips like going to the grocery store can be hard. Luckily I have a supportive husband who is beginning to understand when I need to leave and go home.
You're saying how's that even possible?
Instead I'm surfing the net or watching Netflix, doing things to distract myself while I'm in pain/and or are tired, and or breathed-in/ ate / or were exposed to something that made me feel sick. Or all three? The days I do complain are usually my worst days when I feel I want to scream at the top of my lungs make this pain stop. The word I hate most is CANT. I don't know about others but I like to get things done. It's been hard to realize I have to tell myself you can't do this today; but it's worse telling others that I'm sorry you can't do what they think you should be able to do. Simple trips like going to the grocery store can be hard. Luckily I have a supportive husband who is beginning to understand when I need to leave and go home.
You're saying how's that even possible?
Have you ever had the flu? Think of your flu at it's worst and double or triple that, sometimes that is my good day. I try hard to appear normal and do normal things like everyone else so we don't often appear sick.
Others who have ME/CFS & FM cannot even get out of bed/ eat/ or live any type of normal life.
Others who have ME/CFS & FM cannot even get out of bed/ eat/ or live any type of normal life.
Millions of people around the world suffer in silence, we don't want sympathy we just want to be heard.This disease needs research, so they can find the roots of this disease and cure it, for more info on this disease. http://www.disabled-world.com/health/fibromyalgia/
Fibromyalgia Quick Facts
- Affects 3 to 5 percent of the general population
- Occurs in people of all ages, even children
- Men develop fibromyalgia too, although more women are diagnosed with it
- Symptoms are chronic but may fluctuate throughout the day
- Roughly one-quarter of people with fibromyalgia are work-disabled
- FDA approved the first drug for fibromyalgia in 2007 and more treatments are being developed but most find no relief.
Top Twelve Fibromyalgia Symptoms
- Pain all over
- Fatigue
- Sleep difficulties
- Brain fog
- Morning stiffness
- Muscle knots, cramping, weakness
- Digestive disorders
- Headaches/migraines
- Balance problems
- Itchy/burning skin
- No relief from symptoms
- Chemical sensitivities
