Dear Readers

Fear not the Darkness, But What Lies Within, The recesses of our mind, The creepy cobwebbed corners,That lingers on and tickles us,With tingle feelings of alarm, The deep in the stomach, Pain we feel when we do warn, The fear is deadly it seeks, The deepest corner of our mind, It's just a story to alarm,Educate and provide entertainment for our minds. So read on dear reader, I hope you find the stories amusing and full of charm.

Monday, May 12, 2014

International ME/CFS & FM Awareness Day #Spoonies #Fibro #ME

May 12th is International ME/CFS & FM Awareness Day in honour of that day and the fact that this week is International  ME/CFS & FM Awareness Week 

Like a lot of fibromyalgia and multi-chemical sensitivity patients I hate talking about it. We suffer in silence (after all who wants to hear someone complain day after day, that they are in  pain/and or are tired, or breathed-in/ ate / were exposed to something that made them feel sick.  Or all three? The days we complain are usually the worst days when we feel if we don't say anything will explode from the extreme level of pain/or tiredness that feels like it's taking over our every waking moment. stealing our life away. The word we hate to say most CANT. Sooner or later that word is uttered and we hate to say it.
Have you ever had the flu? Think of your flu at it's worst and double or triple that, sometimes that is our good day. We try hard to appear normal and do normal things like everyone else so we don't often appear sick. Others are worse off and can not even get out of bed/ eat/ or live any type of normal life.

Millions of people around the world suffer in silence,we don't want sympathy we just want to be heard.This disease needs research, so they can find the roots of this disease and cure it, for more info on this disease.

Fibromyalgia Quick Facts

  • Affects 3 to 5 percent of the general population
  • Occurs in people of all ages, even children
  • Men develop fibromyalgia too, although more women are diagnosed with it
  • Symptoms are chronic but may fluctuate throughout the day
  • Roughly one-quarter of people with fibromyalgia are work-disabled
  • FDA approved the first drug for fibromyalgia in 2007 and more treatments are being developed but most find no relief.

 Top Twelve Fibromyalgia Symptoms    

  • Pain all over
  • Fatigue
  • Sleep difficulties
  • Brain fog
  • Morning stiffness
  • Muscle knots, cramping, weakness
  • Digestive disorders
  • Headaches/migraines
  • Balance problems
  • Itchy/burning skin
  • No relief from symptoms
  • Chemical sensitivities


  1. I appreciate you writing this.I had CFS for 5+ years in the 80's but have only minimal knowledge of fibromyalgia. Your post was helpful.