Like a lot of Fibromyalgia, Myalgic Encephalomyelitis and multi-chemical sensitivity patients, I hate talking about it. We suffer in silence (after all who wants to hear someone complain day after day, that they are in pain/and or are tired, or breathed-in/ ate / were exposed to something that made them feel sick. Or all three? The days we complain are usually the worst days when we feel if we don't say anything will explode from the extreme level of pain/or tiredness that feels like it's taking over our every waking moment. stealing our life away. The word we hate to say most CANT. Sooner or later that word is uttered and we hate to say it.
Have you ever had the flu? Think of your flu at it's worst and double or triple that, sometimes that is our good day. We try hard to appear normal and do normal things like everyone else so we don't often appear sick. Others are worse off and can not even get out of bed/ eat/ or live any type of normal life.
Millions of people around the world suffer in silence,we don't want sympathy we just want to be heard.This disease needs research, so they can find the roots of this disease and cure it, for more info on this disease. http://www.disabled-world.com/health/fibromyalgia/
Fibromyalgia Quick Facts
- Affects 3 to 5 percent of the general population
- Occurs in people of all ages, even children
- Men develop fibromyalgia too, although more women are diagnosed with it
- Symptoms are chronic but may fluctuate throughout the day
- Roughly one-quarter of people with fibromyalgia are work-disabled
- FDA approved the first drug for fibromyalgia in 2007 and more treatments are being developed but most find no relief.
Top Twelve Fibromyalgia Symptoms
- Pain all over
- Fatigue
- Sleep difficulties
- Brain fog
- Morning stiffness
- Muscle knots, cramping, weakness
- Digestive disorders
- Headaches/migraines
- Balance problems
- Itchy/burning skin
- No relief from symptoms
- Chemical sensitivities
I wrote this poem about the monster I call Fibro.
The Monster
Within
It calls to me, it’s breath blowing
It calls to me, it’s tendrils showing
It calls to me, and speaks in sweet whispers
It calls to me, and shows sweet lures
Promising if I listen it will subside
It lies, it lies!!
I give it none.
no smile no wave
But it looks at
me, as if it can’t behave
I turn my head, acknowledge it not
For life, its
battle I have fought
The normal things that others do
They are not for you
It shouts and screams and screams
But I listen not.
Through distant
cries it calls to me
But it’s lies, do
not get to be
I close the door, heed not it’s siren call
For in my heart
and body it dies
Or simply lurks in a dark corner today
I hide it away, not letting it out to play,
It is not here, I tell myself
It won’t come in and ruin my day
It shouts, it pleads
Ignoring would be a sin
But I will not let it in
I battle on and
this time I win
But the battle
is always nigh
And my attention
will not die
Pain and
strength weakening
I fight on the
good fight
This battle will be won
The monster’s
tendrils extend it’s reach
Fighting I move
into the breach
For it’s me who
will teach
The monster it
is no more!
If only for
today, for
Now the monster's
gone away
I can come out to play.
©Sheilagh Lee May 12, 2015
